It has been a hot and stressful week here at Hacienda Del Asbell. When I was in Tucson getting my CT scan, the outside thermometer in my car read 118. Tucson set a record for three consecutive days of 115 degrees or above, Tuesday thru Thursday. Even as I am writing this blog it is 110 here in cool Green Valley. Oh how I long for a day when the high temperature stops at 100!
A lot of cancer patients find getting scans very stressful. There is even a word for that: scanxiety. Fortunately I don’t suffer from scanxiety. But I don’t look forward to them either, especially when I have to drive two hours in that heat. With this most recent scan I assumed it would show tumor growth, so when I got the results on Friday, it was either going to be as expected or a happy surprise. Not a lot of stress there.
My greatest stress this week came Wednesday and Thursday concerning my cancer buddy and master of our house, Cotty, who is on kitty hospice with lymphoma. Cotty had an Adverse Medical Event. When he was diagnosed three months ago, he was put on medication that nurse Lee administers twice each day. The doctor told us that the medication could work or not, he could last a few days or a few months. Wednesday night and Thursday morning Cotty had massive bloody diarrhea and vomitting. Both Lee and I thought this was it and with heavy hearts we scheduled an appointment with the intention of putting him to sleep. Upon examination, the doctor felt that this could be an isolated incident. She gave him several injections with additional medications for nurse Lee to administer. The doctor said we should know in a couple of days. Although Cotty has shown some improvement he is very lethargic, with very little activity. It is obvious he does not feel well. I am very worried that I may soon lose my very best buddy. This comes just two months after losing our beautiful Miss Bubble.
Friday afternoon we met with Dr. M at the Cancer Center. Unfortunately, the results were not a surprise. I have steady disease progression. My cancer is not exploding, but it is growing. There were 24 new tiny tumors in my lungs that were too small to see on CT previously. He offered me the option to continue on the trial or withdraw. After a discussion we agreed that withdrawing was best. I came prepared for this news with the details on trials currently available in Arizona for his input. After looking them over, he felt that none of them were right for me. He said I should wait, as new trials pop up all the time. In the meantime he wants to biopsy the tumor to see how the oncolytic virus changed the tumor makeup with the purpose of identifying possible new targets. So that’s what we are doing. I am still officially on the trial until a blood draw on July 5. This is not what I hoped for when I started the trial, but at least I had the opportunity. The information I generated with this study will help PsiOxus in future studies and with future patients in treatment.
In about two weeks I will meet with my pulmonologist to deal with the agitating and irritating cough. But the consolation prize I received yesterday from Dr. M was a prescription for some steroids (taboo with an immunotherapy trial) that will soothe the irritation in my right lower lung that is causing the cough. It is a temporary solution, but I already am coughing less! 🎉🎉🎉
Despite my coughing I have been able to paint. Below is my painting of Panzer who loved to run at top speed with her ears and tongue flapping in the breeze. Panzer lived in Corvallis, Oregon which is Oregon State Beaver country. However, I have a reliable source who informed me she was an Oregon Duck fan. Ducks are much more fun to chase than beavers. Go Ducks!
I had really hoped that trial would work, lets hope for a new one to come along soon.
LikeLiked by 1 person
I had high hopes, as did the experts I contacted. But it is an experiment, based on failures they tweak and hopefully succeed.
LikeLike
Thanks for the update Jim. Disappointing news for sure, but we’ll be praying for a new trial. Glad to hear you’re getting some help for that cough. Hope AZ cools off soon.
LikeLiked by 1 person
I see you getting a taste of heat up there
LikeLike
High 90’s in Portland. I guess that would be balmy in AZ.
LikeLiked by 1 person
less coughing does sound like a plus. with you and lee and your doc looking for another good trial, something will come along soon. wish it had been this one, but if at first … sorry about cotty
.. sorry about the weather. don’t know if you have been aware of our weather here in central n.y. but our heat must have been dealt to you by mistake. this is the coolest summer weather i have ever known it to be. in the next four days’ forecast we never get out of the 60’s. wish i could bottle some and send it your way.
LikeLiked by 1 person
I’d take it!
LikeLike
Thinking of you and Cotty. We had to put Coconut to rest last week. I am glad we had you paint a portrait of her.
LikeLiked by 1 person
Sorry about coconut, it is hard. Cotty had another episode tonight and he is just sitting. I feel so sorry for him
LikeLike
Sorry to hear the news even when the artist in you is getting better with every new canvas you produce. We cannot express enough how you and Lee have shown us the value of a wonderful neighbor with strength beyond words to keep facing obstacles we have no control over and be a meaningful strength for those we touch. You both remain in our prayers as we look at a new day.
LikeLiked by 1 person
Thank you
LikeLike
So, no one’s going to come visit if you keep talking about how miserable the heat is! Remember the whole Iceland/Greenland swindle? You gotta tell us how cool and lovely it is, then we’ll all decide it’s OK to visit in August, instead of putting if off til March, when we can fit in a little spring training and the Grand Canyon, too! But seriously, so sad about Cotty, and use those steroids!! That’s what they’re for. Effing cough. Effing tumors. Effing everything! Hope you feel well enough to be a little pissed off, but not so pissed off that you can’t laugh and enjoy a glass of … rosé? Prosecco? What’s good in that heat?
LikeLike