I have completed the first round of Lonsurf, aka, TAS-102. Well actually it’s a 28 day cycle, with imbibing the poison, er…, I mean “medication” done in the first 14 days. So I’ve consumed the first round dosage and I’m currently just sitting here letting it fester. Hopefully it is tearing the tumors to shreds. God knows I’ve been doing my part by consuming some very fine wine the past two weeks, got to take good care of my TAS.
This is my first experience with chemo pills and it’s kind of eerie. The instructions advise me to take 2 each of two different pills twice a day (am/pm) within an hour of a meal. So far, no problem. Then the scary stuff begins. The directions stress the toxicity of the pills, keep them away from children and cats. It gets worse. I am to keep the pills isolated from all other medication. I am to wear latex medical gloves when handling the pills and clean all surfaces that come into contact with the “medication.” Yikes!! And I’m ingesting this stuff? Don’t let anyone even touch these pills, now swallow four of them!
Fortunately Lee came to the rescue with pretty blue latex gloves for me to wear and a politically incorrect recipe box in which to store the two vials of “medication.” The recipe box was my mother’s from my childhood. At least it is the appropriate color for DANGER.
So far I have tolerated the medication pretty well. Side effects have been minimal and my blood work is well within the normal range. My numbers will probably dip a bit more, as the side effects of the drug peak in a few days, but I should still be within normal as I have plenty of margin to work with.
Last week we had a visit from one of the local hospice providers. As you know, hospice is one of the tools in our toolbox we may use to extend both the quality and quantity of my life. We want to stay ahead of the curve so we arranged for an information meeting. The hospice nurse was aware of my book. We talked about it and she told us she wished she had spoken to me a day earlier as it would have helped her with one of her clients. She purchased a book from me and asked me to sign it.. Jimmy’s first book signing!
After focusing on my book, I’m back painting and should have some outstanding, or is it outlandish, works to show you on my next post. Regarding my book, I’ve had great feedback and some stellar reviews, thank you. (Unfortunately I cannot divulge the amount paid for 5 star reviews as I’ve signed a non- disclosure). If you’ve read the book and liked it, please give little Jimmy a 5 star review, it helps. And please spread the word.
Those of you that have read my book know that I wear a virtual cape whenever I visit my oncologist. Well my friend Mark Portrait thought that I should have a real cape to wear. Thank you Mark! It is a stunning outfit when matched with my favorite T-shirt.